| This article touches on something interesting but is woefully inaccurate to the point of causing harm. It devolves into almost an entreaty to pull yourself up by your bootstraps and take responsibility for not being understood. Being understood is a complete joke, it's simply not important and for many of us on extreme ends of the bell curve is effectively impossible. I was born with multiple heart defects, I was constantly at the cardiologist until about 15 with multiple surgeries and procedures. In all likelihood I will die relatively young. My first memory and start of having memories was at 3, where I was about to go into surgery and might just die. A high probability of imminent death is the first remembered experience of my life. I was fully grown by ~12 as a result of the stresses of surgery. My parents both died when I was right around 20, a few years apart. I started working fulltime at 15 to keep a roof over my families head and food on the table because of a combination of my fathers depression, the lies an old friend told him, my mothers poorly timed diagnosis of cancer and the evil state of pre-existing coverage rules pre-aca. I was homeschooled after the age of 5. I was not allowed to lift anything heavier than a jug of milk until 16 due to my heart problem. I was not allowed to play organized sports. I never had a birthday party with friend until 30 due to my birthdate. My entire perspective on life is inverted, I am a dead person still living not an alive person avoiding death. This is fundemental and very very rarely understood. Do you think at 7 any of my peers could understand me? No. Ditto as a teen and even into today. I am an extremely clear and concise communicator but I cannot inject complex, time layered, developmentally critical... insanity into a concise story that conveys the truth of living it. Not even as a novel. The people I felt best understood by were a group I knew when I was 10 and they were in their late 70s and early 80s and about to die. They played cards together at a senior citizens center, some traumas and life perspectives cannot be understood, it's a bell curve like so many things. I am now in the top ~.5% of earnings for my cohort, this is also further isolating, I have a rare amount of resilience as well. There are other unsusual things that are more common but still rare in and of themselves and compound the lack of shared reference points. Small bits of my experience can be connected to by others now that I am older, the early loss of a parent, having a career as a child, the existential fear of returning to poverty, extreme poverty when young, homelessness, kids that had a leukemia relapse and the distancing that caused with their parents... but all together there is no one who can enter into my headspace, there is no cohesive framework of experiences for people to understand the extremes I have overcome. Some trauma and experiences can smooth your edges and help you have the compassion to better connect, but at the extremes you just have to realize that being understood and being loved are not the same. You can have a full life filled with love and many dear friends and community without being "understood". |
I was also born with a genetic disorder, and been going to doctors constantly since birth. Not a heart condition but had likely organ and brain damage so they were always checking my development as if they knew I would never amount to anything. Always on expensive medications and scared of losing insurance too.
Sorry about your parents, my parents are still alive, they helped so much.
I was also homeschooled after age 10, but couldn't even hang out with other kids (they could come over, but I couldn't go to them). And never sleepovers of course.
Dealing with so many limitations I also felt most at home with seniors, couldn't really relate to my peers.
I know I'll die earlier than others, that's fine, I learned to appreciate the time I have more.
I'm also in the very top % income for my age, I can't tell anyone of my friends how much I make besides the ones in similar jobs. Showed those doctors at least.
I've never even met someone with the same condition let alone became friends. And I have other secrets that I'm too paranoid to share.
That's extremely isolating. I just think I'm not meant for love and deep connections/understanding. I have good friends but they can't possibly understand what I've been through to laugh and have drinks together.
Then again, you can say the same thing about other people too, and they still manage to not be lonely.
I also made mistakes sometime, pushed people away because I was so used to being alone. But really what did I do wrong? How is it possible to fix?