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by theshackleford 549 days ago
I just have a lot of things I have to do in my program, and I have to do them twice a day, every day. I thought it might be better not to do it every day, and asked that, but was told no by two separate physios and my care team and so twice a day every day it remains. I also do in person physio and pilates on top of this three days a week.

It's obviously good for me (what kind of exercise isnt I suppose) but id probably feel better if I was getting out of it what I wanted, which i'm not and i've now been told I probably never will. But I cant stop because even though im not getting what I want, if I stop, in the long run, i'm probably even worse off. (Though, isnt everyone really.)

Id far prefer to move over to something like a bodyweight fitness program on a three day a week rotation, but I just cant do it physically until I undergo further evaluation and likely surgery, and would not have the energy to fit it in on top of my current physio regieme even outside of that.

I didnt mean "I wish it was only 30 minutes" in that I hate doing it, i'm just tired and it takes a lot of my time. I think at 30 minutes a day, it would just feel a whole lot easier to fit into my life, as opposed to building my life around it. I need a minimum now of about 1h30m before work, and after. Which means everything else in my life has to bend to accomodate that.

I do miss sessions occasionally, but I try not too because i'm only cheating myself, nobody else. I have a spreadsheet I use to keep myself honest.

1 comments

I am in the same situation. Disc herniation, post surgery, doing pt every day and no material improvement in 3 years. Ive tried many pt programs. My time is under extreme pressure.

I need to stop sitting, and revert to a hunter gatherer movement pattern of walking, running and crouching. Unfortunately i live in nyc and my desk job may kill me.

If we can use AI+VR/AR to put an end to desk work, it will dramatically benefit billions of souls.

> I am in the same situation. Disc herniation, post surgery, doing pt every day and no material improvement in 3 years. Ive tried many pt programs. My time is under extreme pressure.

Ah, we’re in very similar situations. I’m sorry to hear of your struggles. I unfortunately know too well what you’re enduring. I wouldn’t wish this on anyone.

I had severe cervical myelopathy where my spine severely compressed my spinal cord, causing permanent damage. I underwent a cervical decompression and ACDF, but I’ll live with an incomplete spinal cord injury and its consequences for life.

On top of that, I have a herniated disc and Tarlov cysts in my lower lumbar spine. As if the cervical issues weren’t enough, I now fall randomly, making staying upright a constant challenge. The pain from both issues is so severe and relentless, I struggle to even explain it other than to note that it is "life altering."

I’m a few years out, and we’ve now discovered that my cervical spine is compressed again, along with nerves on the right side of my body. I started another physio program through my pain management team, but its not helping, more surgery is the only real solution. Still, I have to stick with physio because, as my medical team says, I need to be fitter than most people to manage my condition. Things are difficult enough that I don’t have the energy to question their guidance. What little energy I do have goes toward trying to stay employed.

> I need to stop sitting, and revert to a hunter gatherer movement pattern of walking, running and crouching.

I have a sit-stand desk and alternate between standing and sitting throughout the day for pain management. I’ll stand and pace for an hour, then sit for a while. It helps with pain in the moment, but I’m not sure it does much more than that.