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Glad your wife's treatment seemed to work out well. I'm sure it was hard to watch your wife wait out the next Dr appointment. I have a friend and they decided to "pray the cancer away", and didn't seek medical treatment until there were skin lesions visible. The nurse at that appointment had to leave the room to vomit it was so bad. They went through surgery+chemo+rad and she's been in remission for a number of years now. So, even in fairly bad cases of waiting it out, there can still be good outcomes. Definitely don't wait though. In my wife's case, they were confident that surgery would resolve it. But when they got in there, it was "acting weird"; it had grown much, much faster than it should have over that time. Initial diagnosis was stage 1, after surgery they called it stage 3+. I had to do battle with the insurance company, because our company was changing insurance, with the new insurance becoming active 4 days before her scheduled surgery. We have a "benefits advisor" that always says "if you have any questions, ask us and we'll take care of you", but they've been fairly useless. In this case, they were telling us that we needed to wait until we had the new insurance cards, which would happen sometime within a few weeks after the new policy became active, then we'd have to submit for pre-approval, which could take another few weeks. And the specialized surgeon was scheduling like 6 weeks out... We eventually found that we could personally guarantee payment, and the doctor was confident that insurance basically never denies coverage in situations like ours, so we went ahead with this course and got everything paid for. Which was good, because as I said, the cancer was "acting weird" and in the 2 weeks between initial location of the growth and the surgery that we were lucky enough to be able to get in due to someone else needing to reschedule, the growth doubled in size. Another 4-8 weeks very likely could have resulted in spread to the lymph nodes and much worse outcome. Another moral of the story: Don't let the insurance company push you around. With cancer, time is always of the essence. |
When it’s cancer, you have to move quick. I knew that from my experience in the clinical setting. That was over 20 years ago now but I still remember when a biopsy or specimen tested positive they’d want to know STAT and would then be calling the patient back in to discuss options immediately. The OR schedule would change to accommodate new cases and such. Outside the ER and Code events, most things in the hospital seemed to move slow especially the outpatient stuff. But as soon as C was involved doctors everyone wanted everything done yesterday.
It’s a good point on insurance as that’s the most common delay/blocker from how doctors would want to proceed. My wife’s young age (denser breast tissue) required a special type of imaging to detect. Insurance didn’t want to pay for it and it was something like 20x more expensive than the normal type. We went ahead and paid, thankfully we could, and her oncologist fought with the insurance a bit about why he justified it. Eventually we got reimbursed. The doctors apparently used her case to help build a new insurance-approved standard for imaging of young high risk patients, which is pretty cool byproduct of our stress.
It was a similar scary high growth type cancer, between the time the imaging was confirmed and a week or two later when it was surgically removed it had growth from 1.8mm to 3.5mm diameter. Which was still considered extremely early detection from what we were told. If she was not already aware of her brca risk and seeing an oncologist annually, it might have been much larger and likely metastasized possibly in the lymph nodes by the time it was discovered. Scary stuff, you guys did the right thing acting quickly for sure. I spent a good portion of my career in healthcare finance, and see how decisions are made regarding capitalistic agendas and have experience the patient side of these decisions as well, needless to say I’m strongly in favor of socializing healthcare and even removing the profit motive entirely. Some things shouldn’t be investments. It bothers me that all those against it are just ignorant to the existence of these kinds of issues and have been fear mongering. I think we have current resources to “do it right” if we put the proper thought and execution into it.