[bdcravens]

Interesting note about Trikafta and other advancements in cystic fibrosis: the Make a Wish Foundation announced that children with CF now no longer automatically qualify for their program due to the advancements in care.

https://wish.org/cf-update

[therein]

My friend that had CF was eligible. He was asked by the foundation what he wanted when he was 5-6 years old. He said he wanted to go Zorbing in Australia.

They dragged it until he was 18. He always jokingly said "make a wish foundation is waiting, hoping I'll die".

He finally got to go Zorbing when he was 19. Passed away a few years later.

Not surprised the foundation jumped on Trikafta to remove eligibility.

[ForHackernews]

This is also mentioned in the article:

> Recently, Make-A-Wish announced that children with CF would no longer automatically be eligible for the program, because “life-changing advances” had radically improved the outlook for them.

I know this is a long piece, but half the comments in this thread seem like people didn't even bother to read it before commenting...

[bdcravens]

Fair enough. As someone who takes Trikafta, I skimmed the article since it wasn't news to me :-)

[tnias23]

There’s a sign-up process required.

[ForHackernews]

Ah! Fair enough. I assumed HN links bypassed the paywall.