|
|
|
|
|
by therein
839 days ago
|
|
My friend that had CF was eligible. He was asked by the foundation what he wanted when he was 5-6 years old. He said he wanted to go Zorbing in Australia. They dragged it until he was 18. He always jokingly said "make a wish foundation is waiting, hoping I'll die". He finally got to go Zorbing when he was 19. Passed away a few years later. Not surprised the foundation jumped on Trikafta to remove eligibility. |
|