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by therein 839 days ago
My friend that had CF was eligible. He was asked by the foundation what he wanted when he was 5-6 years old. He said he wanted to go Zorbing in Australia.

They dragged it until he was 18. He always jokingly said "make a wish foundation is waiting, hoping I'll die".

He finally got to go Zorbing when he was 19. Passed away a few years later.

Not surprised the foundation jumped on Trikafta to remove eligibility.