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by bulkprotocol 1359 days ago
It really makes everything 100x more difficult. Especially in a cognitively intensive field. Completely killed my aspirations of being a Lawyer. I simply just could not keep up. Graduated with a terrible undergrad GPA. I was just so tired I couldn't really use my brain. Then basically limped over the finish line even though before my symptoms started I could crush reading materials.

So it can definitely be a barrier for certain career choices. Luckily working in software remotely has afforded me a lot of accomodations. I truly don't know what other field I could be in that would simultaneously be flexible enough to accomodate my disability and also lucrative. Im glad I live now! I would have probably ended up Homeless if I was born 60 years ago.

I'm medicated now so a lot of my symptoms are not as bad as they used to be. I am able to drive and no longer suffer from "sleep attacks" but there was a point before my diagnosis when I was so tired I could fall asleep while driving and not even notice. Very dangerous and a very scary experience. Most days I had to take naps every 90 minutes or so and self medicated with approximately 1g of caffeine a day.

1 comments

what kinds of accommodations? I’m surprised SWE was more flexible considering the cognitive demands
Generally I have to split up my work hours. Very hard for me to wake up in the morning and be productive by a 9 to 10am stand-up. I mostly cant start work until 2 or 3pm most days. Also naps. Scheduled and on my calendar as busy time that I cannot be contacted. When it comes to prod support I make it clear that if there are days Im struggling harder than normal, I may need a backup

Unironically for a lot of narcoleptics we can suffer from delayed circadian rhythm disorders as well so interestingly my brain is more awake at say 11pm than 11am.

Like naps when you need them. Remote jobs are maybe more likely with SWE.