[MathsOX]

Sick Children's Hospital in Toronto is a global leader in research and the center for all of Canada's EB patients. The EB program is the only one where ALL members must rotate (i.e - take time away from EB patients). To see the toll on all involved is devastating; partly because the realities for EB outcomes are still stark.

Sick Kid's developed an iPhone app - which is actually quite informative to go through on your own - to help create more structured outcomes: http://www.sickkids.ca/Research/iscorEB/index.html

If you'd like to tear up a bit, here's an article about The Butterfly Girl - one of the stars at Sick Kids whose strong attitude and will I can only marvel in amazement at: http://www.thestar.com/news/canada/2014/07/01/butterfly_pati...