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by emiliobumachar 4020 days ago
My wife has NCS, and a titanium pin in her skull from her worst fall. First, her doctor does clear her for exercise as well, the benefits outweight the risks. Second, there is no cure. It gets better with age, over decades. If you're going to restrain yourself because you're sick, well, it's forever. I can certainly understand those who choose to live with the restrictions for increased safety. But I bet you can also understand, if maybe not agree with, those who choose to face the risks rather than the restrictions.
2 comments

The exercise and the passing out won't kill her, but you can die (or worse) when your head hits the ground.

If I had this condition I'd consider switching to exercises where I'm seated, or in a padded gym. Does your wife take that into consideration when choosing how to exercise? Genuinely interested.

While those with NCS worry more about it, head injuries from falling are a concern of everyone. At almost every cross-country or track meet I've been to, at least one runner has collapsed from exhaustion or lack of oxygen to the brain. Some are more prone to it than others, but it's a risk that participants are aware of and accept. Races rarely happen on asphalt or cement, so falls (by themselves) aren't as dangerous as you might think. It also helps that, even while losing consciousness, runners tend to stick their arms out and cushion their fall.

For most distance runners, their biggest worry is getting trampled. Racing shoes have metal spikes on the bottom.[1] Like fainting, some are more prone to getting trampled than others (typically smaller runners). I've fallen at the start of a race and had my ribs cracked and skin perforated. It's certainly not fun, but it's a risk everyone accepts.

1. https://en.wikipedia.org/wiki/Track_spikes

She's no athlete, but she hits the gym twice a week. A month ago, she took up tennis on a third day per week, which is much riskier, but she's passionate about it.

She usually has symptoms in time to stop and sit down, and she has not had crises in a couple months now. But it's always a shadow.

Sure --- I can see that for sure. It sounds like an awful condition and anything one can do to gain some feeling of control, or overcoming limitations, I can see that.