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by Avitas 4024 days ago
This seems like very good idea to me. It is good enough that I will try to remind people in-person and online about it.

I have given eulogies before. I have focused on only things I wanted to remember and perhaps things I thought others would want to remember--not that there's anything majorly wrong with that. It is not easy to devise guidelines about what should and should not be communicated. But, I do think it is a disservice to someone's life with a disease to be summarized with a single word or short phrase--ESPECIALLY if that time frame is many years.

In summary, I see the issues as:

- Individuals summarizing another person's experience with a disease or condition using single words or short phrases such as "battle" or "long fight"

- Focusing only on periods of their life prior to to their diagnosis

- The ignoring of accomplishments, day-to-day realities of life, significant persons, significant places, etc. after their diagnosis