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by MrBunny 4029 days ago
I actually have changed my diet and take drugs that help prevent more events. Additionally its really hard to track the progression since you can have an event (damage) without actually knowing (mild issues). However the damage is there and IMO is what produce the most day to day trouble. Tricking your brain into thinking your feet are on fire or your arm is weak weird shit like that. When I finally got MRI they found 7+ lesions in the brain and spine. For me to be honest most days I'm ok but it really sucks take these crazy expensive drugs every day. It's a very expensive disease that produces lasting damage even if a cure is to found.

Sorry don't mean to rant.

1 comments

I'm sorry. I have a different condition that has responded to dietary changes, which is why I mentioned it, but I realize that I may just be very lucky in that regard. I wish you well.
No worries I took no offense.
For what it's worth (and perhaps it's worth nothing), I also experience the burning feet feeling that you describe, although it's usually just a tingle. My arm also goes numb sometimes. My neurologist says that I am having silent migraines, which is a type of migraine consisting of just the aura with little or no head pain.

For me, these silent migraines seem to occur after I eat a meal high in histamine. (A salad with balsamic vinegar produces a reliable, strong effect within a few hours.) There is some recent research coming out of Europe that suggests that histamine intolerance is very real, but doctors and researchers in the US haven't caught up to this yet.

Overview of the research on histamine intolerance can be found here: http://www.aerzteblatt.de/pdf/103/51/a3477e.pdf

Histamine has been implicated in the pathogenesis of MS: http://www.sciencedirect.com/science/article/pii/S0028390810...

Anyway, if you ever want to chat about this stuff (even if it's just to commiserate!), feel free to contact me using the email in my profile.