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by sithu 4135 days ago
I would be very interested in seeing a list of diagnoses from cases that were solved correctly. It seems to me that once someone with a difficult to characterize condition has gone through 5-7 physicians, any 'diagnosis' that comes out at the end is either wrong or a placeholder until technology advances.
1 comments

While we don't disclose our full list of final diagnoses, I can give you some statistics from our 700+ cases resolved to date:

-- no single diagnosis is more than 2% of the total, except for one (Lyme disease at 2.3%) -- 95% of these have come up as final diagnoses only once or twice in the history of the site

So it's fair to say that it's a VERY long-tail list. Also:

-- our current success rate is 70% (i.e., the patient told us that we brought them closer to a correct diagnosis or cure) -- about 50% of our final diagnoses are medically confirmed by the patient's doctor

These statistics are based on our post-case surveys, which not all of our patients answer, but they should be directionally accurate.

Lyme disease, or Chronic lyme disease?