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by throwaway58 4336 days ago
> One of the keys to treatment is catching it early.

And then given the right information. My parents were told I might never cross the street alone or write the letter K in handwriting because it was too complex. Look at me: I type 500wpm and write software better than most in class.

The issues for me arise with planning and social things. I might make plans, but I am never able to stick to them if there is no real urge. If someone is not waiting for something to happen and I don't feel like doing it, it's not going to happen. If I think I can make something in 5 hours and the deadline is midnight, I might start on it 4 hours before midnight. And then there is a whole range of social issues, though I can go to a normal school and normal businesses.

My parents just disregarded the entire diagnosis at 6 years old because, look, I could cross the street not much later. Up until about 13 years old, this approach worked fine. It might have been nice to know what really is going on though.

2 comments

Unfortunately, with such a wide spectrum I'd expect doctors and therapists probably want to 'underpromise and overdeliver', as they don't want to get hopes too high. We've seen people who told us our daughter would be talking by 5, 6, 7 - she's 10 now and says some single words but never sentences. Others have told us to plan for lifetime care. It really depends on the type of person that is giving you the information.

I'm sure your parents are thrilled with your progress and the fact that you exceeded the expectations of so many people. Thanks for sharing your experience.

(Twelve attempts later I've solved HN's captcha and created another account so I can comment again. The old one says I'm commenting too fast despite a few upvotes.)

Yes, and I know that. Better this than the other way around. Then again, from what I heard at least, the doctors didn't mention that it might not have to be that way and that I might be able to do all the things they said I couldn't. That time would have to tell.

> I'm sure your parents are thrilled with your progress and the fact that you exceeded the expectations of so many people. Thanks for sharing your experience.

Thank you for saying that. Embarrassingly (but since this is a throwaway), reading that did make me spill a tear. Talking about it in this thread makes it negative; the way you put it makes it not all bad because I know my parents feel that way and I'm doing my best for them. Thank you.

> The old one says I'm commenting too fast despite a few upvotes

New accounts are rate-limited because of past abuses.

> Twelve attempts later I've solved HN's captcha and created another account so I can comment again.

I'm sorry you went through that. I can't do it in fewer than a dozen attempts, or without screaming, either.

The captcha is a service of Google's and is currently borderline unusable [1]. But this isn't Google's fault so much as that captchas in general are just broken right now. We're using them as minimally as we can. In fact, everywhere the code currently invokes a captcha, it used to refuse to make a new account at all.

We marked your account legit so you won't get sent back to captcha hell.

1. It's telling that the images on their own site don't look anything like the cruel tricks they actually spring on users: https://www.google.com/recaptcha/intro/index.html

>I'm sorry you went through that. I can't do it in fewer than a dozen attempts, or without screaming, either.

I really appreciate that YCombinator found someone with empathy to work in the capacity you do, dang. In general, there's way too little of it in the online world.

Thanks! I got frustrated after even a newly created throwaway was immediately unable to post anymore on fiber and posted one more comment (that I had already typed) over 3g. Right now I'm too busy to comment more, but thanks for flagging me as legit.

While on the subject, I might also mention that the guidelines ask me to mail info@ycombinator.com for questions instead of posting here. I would, it's just that:

> Delivery to the following recipient failed permanently:

> info@ycombinator.com

> Technical details of permanent failure: Message rejected by Google Groups. Please visit http://mail.google.com/support/bin/answer.py?hl=en&answer=18... to review our Bulk Email Senders Guidelines.

For the record, I never sent bulk e-mail to any address or service. It's really a hard reject and not just a push to the spambox. Google doesn't seem to care about individuals hosting their mail at home (usually I end up in spam, something Gmail users never seem to look in).

Not being able to comment normally and then not being allowed to email you because of a third party (which is too monstrously large to complain to) is quite annoying.

Weird. I've not seen that before. I'll pass it to kogir.

But the guidelines have been changed for a while to say hn@ycombinator.com. Can you try emailing us there?

> 1. It's telling that the images on their own site don't look anything like the cruel tricks they actually spring on users: https://www.google.com/recaptcha/intro/index.html

I'm pretty sure that right now they're just using it to index street addresses, and maybe test some kind of number-recognizing algorithm.

500wpm? Wikipedia is not entirely clear about the world record, but it seems to be well under 300.

http://en.wikipedia.org/wiki/Typing

Oops, I meant over 500cpm which is around 100wpm. My bad.