| Hi Noga. Forgive me, I'm not understanding. How do I get my health records? I designed and implemented the backend(s) for 5 regional health exchanges, did some front end work on our physicians portal, prototyped the patient portal (shopped around to our clients). I also participated in the competitive NHIN interop effort (we were a sub on the Northrup Grumman team). If you've seen the Mirth stack, my stuff was roughly the same (at the time). Every participant in our exchange (hospitals, labs, scripts, clinics, insurers) jealously guarded their data, hoping to monetize it. Maybe the scope of "meaningful use" has expanded, but when it started it was just a dozen or so fields. (The phrase "meaningful use" seemed to be an example of unintentional irony.) I can't gleen your business model. And unless you have data access / sharing agreements, I don't see how you can get my records. (I'm a few years out of date, so maybe things have changed.) If you were creating a "white label" patient portal for your customers (e.g. hospitals) to implement, that'd be cool. If you were kickstarting a lobbying group to empower patients with access to their own data, I'd definitely contribute. |
It's definitely nuts that this would be the solution, but I don't think we can wait for HIEs or for someone to get data access/sharing agreements for exactly the reason you state. Every player is jealously guarding their data.
You're right that we don't get the complete record, but whats in there is actually pretty rich.