[Mz]

And I can't help but wonder why this gets support but I am routinely downvoted and generally crapped for attempting to talk about what I have done to beat my medical death sentence. It is not intended to piss on this effort. I just honestly do not understand this. If you have genuine concern for other people, why say nice things only after they are dead? Why be so awful to the living? Why shout down someone trying to figure out how to help people with deadly conditions?

I honestly do not know where to go anymore to try to talk to people and work on anything. This isn't intended at all as dickish. If people have so much compassion, why not try to support efforts to improve things?

[illuminate]

"And I can't help but wonder why this gets support but I am routinely downvoted and generally crapped for attempting to talk about what I have done to beat my medical death sentence"

Since you're being so rude here, I will note that it is probably because you are an unreliable narrator who "cures" herself with blogsourced finds and people have little need for advice that is not based in reality. You post about being shunned by multiple CF communities, I would be willing to guess that it is not because they are afraid of any stunning discoveries you have made.

[dang]

Personal attacks are not allowed on HN, regardless of how strongly you disagree with someone.

It's true that the GP's complaints about downvotes also break the HN guidelines, but being mean is much worse. Please don't.

[illuminate]

You're right. The insincere "wondering why" shouldn't have baited my response.