[seanahrens]

It's an iterative and building process for us to get where we want to go with Crohnology. The start is less scientific, but as we build better software, with larger N, and bring on the involvement (and attract the attention of) more researchers and doctors, things will build their rigor.

If you believe in the vision, of gathering patients together to collect and learn from more real-world data points, in concert with oversight by researchers, then the current implementation is, well, just the current implementation to get us to that end goal, of a more engaged, globally-distributed means of learning from patients as they live and treat their disease.

Medical science is fundamentally the study of how inputs to a body relate to outputs of the body (in the scope of treating disease). If we can collect a continuity of these data points in the real-world, among a global populous, you have the potential to understand the disease in ways never before possible.

[carbocation]

In medicine we lump UC and Crohn's because they are both inflammatory bowel diseases. I think it's entirely reasonable if you do the same (at least / especially initially).

[ajuc]

I've been diagnosed with UC 10 years ago, only recently doctors changed their diagnosis to Crohn's disease (btw it's called Leśniewski-Crohn disease here). Apparently it's hard to distinguish, and I think it's good to keep them together.

[wyck]

Thanks you, I did not mean to be negative and think this site is a great resource to build a community, I just had some concerns.