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by Mezzie 4 days ago
Also, research yourself and all the ways that you differ from the norm. Medicine makes its recommendations based on a standard patient, and knowing the ways in which you are not a standard patient and ensuring your doctors have this information is important.

For example, I have very weird/non standard genetics when it comes to processing medications, so I've had to learn which classes of drugs I need very small doses of or that I can't take at all. (Some drug classes aren't made in small enough doses for me to take safely). So I have to relay this to doctors and we make our medication decisions accordingly.

Or if you run hot or cold. My body temperature is usually a ~ 96.5, so I'm feeling awful by the time my temp hits 99.5, even though that doesn't register as a problem generally.

Or how I pushed to get a mammogram covered before it is ordinarily because my mother, grandmother, and great-grandmother have all had 3+ rounds of triple-negative breast cancer even though they don't have the BRCA genes: the standard recommendation doesn't fit our family and I am high risk despite not having the standard markers for being so.