[ksenzee]

Autonomic neurologists are the relevant specialists. I invite you to look for one in your local area and see how rare they are. The last I checked, the Seattle metro area (and in fact the whole state of Washington) had precisely one board-certified autonomic neurologist. Diagnostic delay is, unsurprisingly, around six years. Combine that with the fact that all the equipment you need to do a basic POTS test is a pulse oximeter and a blood pressure cuff, and yeah, you're going to have people self-diagnosing, for good reason.

[kranke155]

I did see a doctor.

[ksenzee]

Oh sorry, I didn’t mean to imply you didn’t. If you were lucky enough to get a doctor to diagnose you before you figured it out yourself, congrats. That should be more common than it is. There are way too many doctors out there brushing off obvious signs of small fiber neuropathy.