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by OptionOfT
30 days ago
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I think this is very dangerous. And yet, in hindsight, I would've wanted it for me, my sister, and my wife. My sister and I have a certain type of EDS. My wife has another kind. Born today, based on the current science, tests would reveal this. It wouldn't change the progression of the disease, but it would have dramatically changed the journey. At the very least it would've avoided the self-doubt, and it would've provided defense against doctors when they said 'oh you're just tired' (we all have the EDS symptom that sometimes our batteries are VERY low). |
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