Interesting. I am also diagnosed with ET (from platelet counts, pathology report noting abnormal platelet morphology, and JAK2 mutation from a marrow biopsy). What made you seek a second opinion?
My original specialist wasn't very engaged with my condition. I was getting the same speech every six month visit. On my last meeting she incorrectly stated a condition I wasn't having with bleeding.
My wife had a thyroid issue a number of years ago including cancer growth on it. Her first specialist was using older techniques for her treatment. We ended up going to another specialist who's focus of research was her condition. It was worlds better. Given that experience I decided to find another specialist who focused on my condition.
The first specialist ( hematologist) was referred from local GP. She is a a hematologist, but she wasn't focused on MPNs.
I recommend joining your local MPN alliance to keep up with what's going on in this field. I also recommend finding a specialist with a focus on MPNs. Looks at their papers or listed focus.
The first specialist ( hematologist) was referred from local GP. She is a a hematologist, but she wasn't focused on MPNs.
I recommend joining your local MPN alliance to keep up with what's going on in this field. I also recommend finding a specialist with a focus on MPNs. Looks at their papers or listed focus.