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by rottencupcakes 17 days ago
Defaults matter.

Opt-in vs opt-out organ donorship has a large impact.

Most people on any web app won’t stray from the defaults.

5 comments

I sincerely hope this never comes to pass, but you or your loved ones may someday find themselves in the position of wishing more people were opted in for organ donation.

The same cannot be said for some random corporation training AI models off your data to make a buck or two.

I think it might be better to get rid of the organ *donation* system entirely.

Organ transplant surgery costs hundreds of thousands of dollars, yet donors get zilch, which is completely unfair when everyone else in the value chain gets paid.

If instead it was "allow my organs to be sold for my estate" I think the supply of organs would greatly increase, which would be win/win.

there are a number of problems with people selling their organs for profit, it's a perverse incentive — the people in the chain who otherwise get paid don't get paid for the organs, they get paid for the labor of doing their jobs
Which we probably need to consider changing now that some truly bizarre and evil shit is being done on donor organs:

https://news.ycombinator.com/item?id=48212992

Off topic but I'm curious what's evil about that article. Bizarre, sure, but evil? They took a brain (an organ) from a dead person who had previously given consent to use their organs for that purpose.
I think most people, and definitely myself, when they sign up to be an organ donor, they think of the liver, kidney, and heart. Things that will help other people.

Not the brain, the center of conscience, being kept in some sort of horror-movie half-alive state. I do not think we understand consciousness enough to rule out what those brains are experiencing.

That's fair. Personally I wouldn't mind, but when you put it that way it makes sense people would be wary. Kind of reminds me of the series Pantheon, which is amazing but also kinda disturbing for similar reasons.
> half-alive state

The brain can't be "half-alive" after you've died.

> I do not think we understand consciousness enough to rule out what those brains are experiencing.
The parent edited their comment, wasn’t there when I replied. But if you believe your organs don’t die when you die, then don’t donate your organs?
Organ donation saves lives at no cost to you (because at this point you're dead).

It's unclear if my private data being used for training has a cost to me, but I'm giving posthog money already. They shouldn't double dip.

Again, this is because it's uninformed.

Consent matters.

yea except one is a "dark pattern" to exploit customers for corporate profit while the other is to benefit society.