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by UomoNeroNero 37 days ago
I truly appreciate your work (and I’ll absolutely take a look at it).

But let me say one thing: I’ve been diabetic for more than 20 years. Ten years of management with finger pricks, three measurements a day, and insulin pens (thinking about it now, it feels completely insane that anyone could imagine managing this madness in such a primitive way). Then came years of CGM systems (I’m on my third one now, with different types of sensors, but that’s not the point).

I tinkered, automated, hacked things. But in the end I came to one conclusion: you need a competent specialist (someone who also understands that we tend to be a bit tech-obsessed) who, besides listening to you, actually imposes a strategy. We are the ones who need to adapt to the mainstream approach so we can speak the same language and have methods that are compatible with “everyone else.” No doctor will ever fully understand your custom system, and meanwhile the key to proper management is not in what you built.

Precise carb counting (without cheating yourself), correct boluses given at the right times, marking exercise, boredom and repetition, and being lucid about the effects of changes (agreed upon beforehand!) to CGM settings — changes that should only be made when you’re certain you’ve been a “good and precise patient.”

I’m saying this from the perspective of my own devastated situation. I now have an HbA1c of 5.8, but only after 20 years of smashing my head against the wall (and suffering incredible damage, many mistakes, and the classic “I’ve figured it all out myself” approach).

Stay strong.