[fragmede]

I want to get my DNA digitized so I can do all sorts of health stuff for myself, but finding a place that won't leak my data is troublesome. 23andme is right out.

[grey-area]

Buy a desktop sequencer?

https://nanoporetech.com/products/sequence/minion

[fenaer]

I have the same sentiment as OP, but for me the main benefit of a company doing it is the analysis that comes with it.

[odyssey7]

If we are censoring our daily activities and major life decisions like healthcare due to the data economy, then it is making us less free. But who knows how many generations will pass before a solution shows up. We would need representatives who act collectively towards motives beyond profits.

[ogundipeore]

Great suggestion. Thank you for sharing!

[GistNoesis]

Similar to https://xcancel.com/SethSHowes ~10k budget based on minION sequencer. (Edit : his dedicated project page https://iwantosequencemygenomeathome.com/ )

But once your data has been digitized even if it is under your control the likelihood that it gets leaked is still high. Specially now with AI agents running everywhere, or people just asking AI services for medical advice.

Today the choice for advice is between low quality local AI advice or higher quality advice but lose your data control, the rational choice is probably losing your data control even if if will almost certainly comes back to bite you.

[conception]

https://sequencing.com/our-difference/privacy-forever seems the best choice these days.

[sheiyei]

I can believe the company does their best to keep the records private.

...until they're inevitably sold.