Hacker News new | ask | show | jobs
by bunderbunder 185 days ago
My PCP and I have a really good rapport, and so when I stated having weird confusing health problems they were quite happy to hear what I was finding in PubMed and then share their thoughts on it, and together we figured things out and got my situation handled. I thought it was a nicely complementary situation: they didn’t have the time to do a literature dive, and I didn’t have the expertise to fully understand what I was reading.

But I bet what happens more often is patients showing up with random unsubstantiated crap they found on Reddit or a content farm, and I can understand health care providers getting worn down by that sort of thing. I have a family member who believed he had Morgellon’s Disease, and talking to him about it was exhausting.
1 comments
zahlman 184 days ago
> Morgellons (/mɔːrˈɡɛlənz/) is the informal name of a self-diagnosed, scientifically unsubstantiated skin condition in which individuals have sores that they believe contain fibrous material.[1][2] Morgellons is not well understood, but the general medical consensus is that it is a form of delusional parasitosis,[3] on the psychiatric spectrum.[4]

Your family member... mistakenly believed that he had a psychiatric condition involving a mistaken belief?

link
bunderbunder 184 days ago
No, he believed he had Technicolor skin parasites. Suggesting it might be a psychiatric condition was a good way to start a nasty fight.
link
DANmode 184 days ago
I’ve observed people in this “community” from a distance.

Does your family member have the sores?

link