[dns_snek]

There's a difference between "I don't want the disease because I don't want to become a menace to others" (what you're saying) and "I don't want the disease because it would make me lose social status" (what the original commenter said).

[wjnc]

I am left wondering. Can’t people (in general) understand that Alzheimer’s changes a person fundamentally, irreversibly and forever until death follows? Many positive traits of personality disappear, the negative starts to dominate, I think mainly from fear and a subconscious awareness of what is being lost. That’s pretty much 101 of grieving when a loved one is struck with Alzheimer’s. The person has left. You continue caring for a body / a different person because of the relation you have to a former them. But please don’t connect the persons past deeds and being to the actions with Alzheimer’s.

For myself: I hope for assisted suicide before Alzheimer’s. I value me for me. Not-me I don’t value, and Alzheimer’s does not improve not-me over me. But people who cannot separate me from not-me (with whom not-me loses status for me)… I don’t care about them! (Philosophical mood.)

[wuschel]

Of course people understand that.

IMHO it is important to see which context people are coming from. Different culture, social acceptance, historic treatment options, etc. influence the response.

Also, dementia is not the only disease with a strong degenerative impact on character and behaviour e.g there is schizophrenia et al. What is common with many of these conditions that there is a strong individual component of progression and morbidity.

It is great that you have the option to make a choice for yourself. Others might decide to make other choices.

[whatshisface]

Very few people would choose to be unpopular, and unfortunately this type of behavior is decided by brain function, things like depression, from the beginning.

[ToucanLoucan]

Either and or both?

I don’t want to go that way either. If I start losing my mind to Alzheimer’s or dementia I don’t want to slowly turn unrecognizable to those who love me, fuck that shit. Give me something suitable and I’ll do it my damn self if needs be.

[dns_snek]

FWIW I agree with you. I want to go out on my own terms if I get that sort of diagnosis. The only major health-related concern I have is that I'll some day experience a traumatic health event that immediately disables me and stops me from making that decision, whether legally (competency) or extralegally.

I know there are medical directives that can be put in place but they don't cover everything and they can't compel anyone to end my hypothetical misery, the most they can do is withdraw care.

[anjel]

There are lots of degenerative diseases particularly striking the various biological systems of the body. But neurodegeneration, whether Glio, ALS or dementia are especially cruel and horrific in that they attack and erode the patient's personality, a fundament of individuality and self.

[rowanG077]

To me both those things are basically the same.