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by in_cahoots 253 days ago
I am way way out of my wheelhouse here. But you asked, so I'll share my experience and opinion in a roundabout way.

When I was a kid, my parents' nicknames for me were Spock and Ms. Literal. I was gifted, at the top of my class, and my parents advocated for me every single year so that I received a high-quality education. The school was receptive, and I thrived academically. I struggled socially, but being a girl it demonstrated in a lack of friends rather than behavioral disruption. So in every way I was the ideal student. Today I would easily be diagnosed as autistic, but in the 90s that wasn't in the conversation. Especially given our experience with my cousin. I don't think of myself as autistic, I'm just a person with strengths and weaknesses.

Today for better or worse we live in a society that thrives on labels and categorization. Your kid gets a label and all of a sudden the school is able to give him an IEP and the support he deserves and should have been getting all along. In the cynical perspective, your kid gets a label and that affects the way he sees himself and relates to the world. The label becomes a justification instead of just a descriptor.

From the educational perspective, I want the school to do everything possible to help my child succeed. If that means jumping through hoops to get him support then so be it. But from the identity perspective I want my kid to be unburdened. To learn from the world around him without getting pigeonholed. And if a diagnosis was going to lead down this path I would be very intentional about when and to whom I disclosed this information.

This isn't getting into the world of false positives. In my experience (2 boys similar in age to your own) teachers tend to be good referrers just because of the volume of kids they deal with. So if your teacher recommends this there's a good chance they will fall under some diagnostic criteria at some testing facility. The question is what to do with the information.

1 comments

thanks so much for sharing this.