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by PaulKeeble 311 days ago
The problem goes quite a bit deeper than that in medicine. Most descriptions of diseases have been reduced to a primary set of symptoms and presentations. Just this week we had a study showing MS patients start turning up in doctors offices 15 years before the accepted MS symptom set appears and its taken this long to notice. Worse is the set of symptoms that are part of the disease is badly truncated.

This happens in every single disease, ME/CFS is 280 symptoms yet its defined by 4 despite the fact that only seems to match about 90% of the patients but they have other combinations. We are dealing with both the imprecise nature of language and a lack of common experience with which to convey understanding but also a medical system that has drastically simplified diseases to the point where its descriptions and diagnostics are incomplete. Its going to take a very long time to correct it all assuming we can get medicine to once again follow the scientific findings, which remains a big if at this point.