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by dannykwells 394 days ago
This is honestly a fantastic outcome.

Regeneron is among the most science and data focused biopharma and has a long, long history in genetics. They know how critical privacy is and will ensure the data are used to advance human health.

Potentially an even better home for the data than in the company, since now will not have pressure of quarterly reports.

5 comments

On the face of it, this seems like a win-win when you think about Regeneron using this data to make better medicines based on the data.
Oh, now i feel better. They're trustworthy. Got it.
Genetic genealogists are not so optimistic. 23andMe had already made their family discovery options poorer, and now they're bought up by a company with no interest in that.
This was the same sentiment about 23andme many years ago.

If regeneron cared about user privacy, then they would work to make sure consent to use of every piece of data is obtained.

It should be the default to delete any data that has not received a consent upon transfer and users must opt in for regeneron to use it for research or otherwise.

If they cared about "privacy" in the sense of data protection rights they wouldn't be based in the US.
And it's now worth more to aggressive buyers.
Telling the slave how lucky he is to have been bought by a good slave owner.

Buying and selling humans has never been a good thing. Trading their DNA in the marketplace without consent is just the new evil our generation is too blind to see.