[voidmain0001]

Agreed. Long Lyme certainly exists. I appear to have it as do numerous acquaintances. I wrote "appear to have it" because a blood test for Borrelia returns negative. However, just two weeks ago a doctor told me that Borrelia can evade a blood test by infecting the nervous system. That was news to me so I found this from NIH in the USA. https://pmc.ncbi.nlm.nih.gov/articles/PMC8870494/ Borrelia can cross over to the CNS. Lovely.

[Aurornis]

> I wrote "appear to have it" because a blood test for Borrelia returns negative. However, just two weeks ago a doctor told me that Borrelia can evade a blood test by infecting the nervous system.

The theory of persistent infection hasn't really held up. There were a few researchers who claimed to have some evidence, but it hasn't really been replicated. It's largely been dismissed from mainstream research.

Sadly, it's still a favored theory in many alternative medicine communities. It's also a really contentious topic. There's a long history, including Lyme researchers leaving the field after receiving death threats following publication of research that didn't agree with the alternative medicine theories.

> That was news to me so I found this from NIH in the USA. https://pmc.ncbi.nlm.nih.gov/articles/PMC8870494/ Borrelia can cross over to the CNS. Lovely.

To be clear, that article is about CNS penetration of the infection, not persistence of the infection.

[voidmain0001]

Is there a reason you refer to alternative medical communities in response to my comment? Considering I made no reference to using alternative medicine, what does it have to do with my comment? Do you have an agenda? I know that I don't have one and neither did my comment.

[diamondfist25]

This is the bias that people have

They only trust the small sample of evidence that science provides, and dismisses the vastly unknown space that their science cannot comprehend

[seattle_spring]

"Science" is simply a structured methodology that uses tangible evidence to substantiate hypothesis. How exactly would that framework be unable to "comprehend" something like Lyme?

This quote seems apt here: "You know what they call alternative medicine that's been proved to work? - Medicine."

[IncreasePosts]

What symptoms? How can you say your symptoms are from long Lyme, and not something else, or just getting old?

[voidmain0001]

My symptoms are spot on with Acrodermatitis chronica atrophicans.

https://en.wikipedia.org/wiki/Acrodermatitis_chronica_atroph... https://www.ncbi.nlm.nih.gov/books/NBK563289/