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by wwilim 503 days ago
The author states they often can't leave the house and people are offering advice like diving and mountain climbing.

Only someone with a disability can understand what it's like to be weak. Not temporarily weak, just weak. Unfit for anything.

2 comments

Look at the graph in the article. I did a similar one, through for a shorter period. The wast majority is thankfully not at 7+, even if some longer periods has felt like it.

Be a bit careful to not insinuate. Being at 1-2 doesnt mean everything is good. Every day is a question of "how will this day be". I know however that if I only focus on the bad days it can only go one way, and that is downhill until you die. That may sound like a cliche, but when symptoms generally only get worse, and there is no cure, then the end of the tunnel is unlikely to be great.

I don't think that person was specifically offering advice. And I don't think the article was asking for any.

it's interesting info regardless.