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by throwaway9265 501 days ago
I’ve had a family member (Aunt) who’s been diagnosed with CFS since the early 90s whos now in their 60s

There is some good research into anti-virals for treatment. And this has been known for at least a decade. A challenge js few doctors will prescribe the course.

Anecdotally in the late 00s early 10s my Aunt was losing mobility due to CFS causing neurodegeneration. It was at the point she would sometimes crawl rather than walk up a flight of stairs.

Her and I flew to a specialist to get prescribed a cocktail of anti virals (most used for AIDS) and the results were more than a placebo.

Within a year the degeneration didn’t just stop but reversed. Its not a cure for her but it allowed her to reverse enough to have a high quality of life and mobility. Over time she’s progressed back down but who's to say if thats age or condition.

Here’s a link that discusses it, but a search for cfs and antiviruals will return cfs community material and journals.

https://massmecfs.org/more-resources-for-me-cfs/247-antivira...