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by errnoteqnil 573 days ago
You're welcome, I'm sorry for what you're going through. You probably will eventually need to find a specialist who works with patients with dysautonomia or Long Covid but there's plenty of stuff you can do on your own or with a friendly PCP (or maybe more realistically, with a PCP who you can persuade to order the appropriate testing).

This does all sound like POTS and orthostatic hypotension though, maybe with other issues mixed in, but that's a good place to start.

Hopefully my other comment in this thread is helpful!