[Sanzig]

What they need to provide is surveys from the patients without the device (even locked in patients can often communicate slowly via eye-scan interfaces). How well do the patients rate the system at aligning with what they want to say?

If they don't find that it aligns at all, then honestly that is worse than nothing. Imagine being locked in and your family communicating with an LLM pretending to be you - all while you have to watch and can't do anything about it.

[anonzzzies]

It might be beneficial to the family though, but indeed not to you.

[Grimblewald]

I'd argue the family doesn't have the right to feel better at your expense, over something that was no one's fault.