[iteria]

I just want to second the person who said to reach out to your 0 to 3 program. It's extremely important because your child's blindness might be fixable. I was born blind. But it was because of nerve damage. I don't really understand what all the doctors did, but they managed to restore some sight in one eye by the time I was in 3rd grade or so. Enough to read if the book was close and the text large. By the time I was in late high school, I was able to get vision that was functionally enough that I didn't need any kind of accommodation. By late 20s, I had 20/20 vision (I mean in one eye, but that's all you need!)

It can be a long road, but the body is very use it or lose it, so starting early is so important. I still have some visual processing issues, but I need no support and I can even drive during the day. Technically at night too, but it's too iffy for me, so I avoid it at all costs. Not saying this is your boy, but I am saying that consulting with a professional is a good idea in case there's something that can be done even if it takes years to see the results.

[jackdh]

That is incredible to read. It's one of the things which makes you stop thinking about all the awful things in the world and realise just how incredible modern science and medicine is.

[tkuraku]

That's encouraging. We are in the 0-3 program and will do whatever we can.

[frogulis]

That's a pretty incredible improvement. Was that from ongoing therapy over years, or did it gradually improve by itself after your childhood treatment?

[iteria]

Once I got any vision, it was just gradual improvement. The issue is that I missed the critical period for vision so my brain was just spectacularly bad at understanding the world and very slow about learning how to get better. Every year my brain figures out how to process the world a little more. I've always had 20/20 vision technically. There's nothing wrong with my eyes except that my optical nerves are scarred.