Hacker News new | ask | show | jobs
by samjbobb 696 days ago
FYI for any other EoE folks: Dupixent is now indicated for EoE. It’s resolved my symptoms completely (both the ones I notice and the ones my gastroenterologist checks via scope). I don’t experience any side effects.

It’s an off-label use, but swallowed fluticasone is also effective for many people. Also has no to minimal side effects. I did that for many years before dupixent was available.

Exciting that you figured out your trigger. I collected a lot of data and made a lot of graphs, but never found anything conclusive.

Great article. Taking control of your health via the tools we have as technical professionals is awesome.

1 comments

> Dupixent is now indicated for EoE. It’s resolved my symptoms completely

How often does it need to be administered? Regular injections sounds like it might be more trouble than it's worth.

The indication for EoE is weekly, though I seem to be able to get away with every other week.

Dupixent is a subcutaneous auto-injector pen, so it’s the least-bad injection.

Injections definitely suck and everybody has to make their own trade-off assessment.

If you can’t figure out your triggers, and a lot of people can’t, it’s great that we have an effective therapy available now. It dramatically improved my life … once I got over injection anxiety