|
|
|
|
|
|
by yahoobing
753 days ago
|
|
|
One thing I get from this is you need to be really on the ball when you are this sick. Make hard decisions, do tonnes of research and so on. It is probably important to have support people who can “Karen” for the need of a better word the medical and insurance system when it isn’t working. Probably could be a job in itself. Probably is. The follow on is it helps to be wealthy before you get sick. |
|
|
Yep - that's called a "patient advocate". I learned about it when I was in my teens, and went with my grandfather to the VA hospital on a regular basis.
Multiple times I had to remind the healthcare providers that he had long-standing kidney issues, that contrasting agents had caused immediate and significant reductions in kidney function in the past, and that as a result we should consider why such tests were ordered and what benefit the results would provide.
I 100% believe they would have unintentionally killed him years early if I hadn't been there to question them and push back.