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by cfu28 827 days ago
Re: the lack of a standard privacy policy, its a shame that the Model Privacy Notice (MPN) never really took off as a simple, easy to read, privacy policy standard for health apps.

https://www.healthit.gov/sites/default/files/2018modelprivac...

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The concept of creating a standard viral privacy policy that dictates how your data must be access/stored/secured is super intriguing. I'm imagining a future where this is combined with FHIR - you can link individual FHIR resources to a privacy policy/license, maybe sign the resources so they can't be easily modified. Downstream apps would need to respect the policies before using the data.

I do wonder who would actually push for this though - I care, privacy focused patients would care, but getting adoption might be tough?

https://www.hl7.org/fhir/provenance.html