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by goodSteveramos
845 days ago
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>no way to credibly verify that the genetic samples were given with full consent Is there evidence to believe these specific tests did not have consent or are the journals saying that the fact that these studies were done in China is reason enough to refuse to publish any genetics papers from China? Also is there specific reason to believe these databases have been misused or is that simply a concern that has been raised? My apologies if you don’t have all the answers the reporting seems scant on details. |
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In a US lab, for instance, I would expect that a similar genetic study would have hard-copy signed consent forms from every participant in the study with 3-6 year retention requirements, and this could be audited by their institution's IRB if there were concerns. (Ultimately I think there is an accountability chain all the way to the US federal government, though I'm not familiar with how the institutional IRBs are monitored). I don't know what equivalent institutions might exist in China, and whether the journals got/requested any verification of consents from them.
Though for papers like these where co-authors have affiliations with police departments or academies, I'm not sure how trustworthy it would be even if the police did claim they had evidence of consent for the data in these papers. (Given that Chinese police are known to be collecting genetic samples without consent in some documented cases.)