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by bigfont 848 days ago
Why bother? Given the breadth of diagnostic classes these days, there's a good chance you can find a practitioner[0] willing to make a diagnosis. That said, aside from getting funding for treatment or acceptance of accommodations, receiving a label of disordered often does not help, but does add harmful stigmatization. The OP's son seems normal, functioning, and isn't harming anyone. On the other hand, the diagnosing practitioner may need to be tested for Overpathologization Disorder[0].

[0]: http://www.psychologysalon.com/2012/01/overpathologization-d...

3 comments

Our daughter was diagnosed with dyscalculia, and the diagnosis was very helpful, both for us and for her. She was really struggling with maths and felt like she must just be stupid. The diagnosis helped her to understand that it's just a very concrete thing that she has that affects one aspect of her functioning, and doesn't mean that she's dumb, or lazy, or whatever other story she had ended up telling herself. We are homeschooling her, and it also helped us to understand what was going on for her, and to adapt how we teach her appropriately.

> That said, aside from getting funding for treatment or acceptance of accommodations...

Both of those can also be life-changing, but you make them sound like trivial details. They are not.

It sounds like the diagnosis marked a point of positive transformation. Before the diagnosis, your daughter attributed her math challenges to global stupidity and laziness. After the diagnosis, she attributed it to a specific difficulty with math. That reframing does sound healthy and helpful. It also sounds like the diagnosis helped you accept the situation and adapt your teaching modality.

Certainly, funding for treatment and acceptance of accommodation can make a life-changing difference. That in part motivates many caring and concerned practitioners to widen diagnostic criteria, so that more people can access benefits. I can see how I came across as trivializing those benefits. Quite the contrary, though, I meant to express that yes, diagnostic labels can bring positive results, and we need to weigh those against the negative results, especially when other options exist.

> Quite the contrary, though, I meant to express that yes, diagnostic labels can bring positive results

This makes sense. By saying:

>Why bother?

You were describing how helpful a diagnosis can be.

By saying why bother, I meant to discourage diagnosis, while acknowledging its benefits and costs.
Exactly. Diagnosis is a beneficial thing that shouldn’t happen, a straightforward and common sense position to take
I agree it isn't straightforward.

Some things can lead to benefits, without themselves being beneficial.

In psychology, diagnosis is sometimes like that. It can lead to treatment, accommodation, and funding, but the diagnosis on its own may not be beneficial, may cause harm through stigma, and may not be necessary to access the benefits.

The alternative: when possible, provide the benefits without labeling the person as disordered.

That in itself disproves your point though. That’s talking about a specific characteristic: mislabeling. It is really the symptom of someone talking about something they don’t know enough about to be talking about it.

Some people say ADHD for example is overdiagnosed. Perhaps that is true so college kids can get drugs or kids can be calmed down, but it is like saying people who don’t always wear glasses don’t need them and shouldn’t bother.

> Why bother?

Because knowing about the presence of a condition is better than not. Depending on the severity, untreated ADHD during the years of life where a child begins to establish good study habits, management of the condition, and other tools that work for them, can lead to issue down the road and into adulthood. We have the ability to address conditions like dyscalcula with little interventions to help the student be successful.

Just because something is imperfect doesn’t mean it should disregarded completely if the benefits (academic, social, and career success) outweigh the drawbacks of being untreated. The stigma argument is just FUD and letting that take over decision making for the well-being of a child is a bad path to go down.

There are often, unknown to the parent, invisible scars that the child with a non-neurotypical condition will carry for the of their life after having found out about a condition they’ve had since birth and was not addressed during the most critical time of their life when early treatment could have greatly reduced the harm caused by this disorder.

I agree that knowing about something, and accepting it, is better than the alternative. Does that mean we need to diagnose it as a disorder? For instance, I have an introverted personality, and I accept that, even though I didn't receive a diagnosis of introverted. On a more serious note, I have friends who I know and accept as gay, but I don't consider them disordered. The diagnostic and statistics manual used to include gay as a disorder; removing it as a disorder reduced the stigma, and I don't think it reduced the societal or self-acceptance of gay people. Quite the opposite. So like you I love self-knowledge; I only take issue with "diagnosis" as the way to gain it.

You make a good point about the benefits of receiving treatment. I personally have received training in social skills, goal setting, relaxation exercises, and realistic thinking. I learned those skills to overcome specific challenges. I had some anxiety, like every normal person does, so I learned a skill for that. I had trouble dating, so I learned skills for that. I felt overwhelmed, so I learned goal setting for that. I thought I was stupid, so I learned realistic thinking to avoid overgeneralizing and labeling. Throughout that process, I brought my challenges to a psychologist, and the psychologist taught me skills. That approach offers a way to help people without diagnosis, by suggesting treatments for specific challenges.

Can we keep the early treatment and drop the diagnosis?

There are people who genuinely struggle with these things because their brains literally don’t work the same as everyone else. I have ADHD and struggle to be on time to things and god forbid even early. Getting a diagnosis was a life saver because at least I don’t beat myself up for not trying harder.

A diagnosis isn’t a “label”, but understanding of how someone works. It is like being diagnosed with myopia: it explains why your kid can’t keep up in school because they literally can’t see the chalkboard (me, had glasses before finishing 1st grade).

So, no we can’t drop the diagnosis. Chances are you may have something too and not realize it. Does that make you less human? No. It just means you think a little different.

Assuming you grew up in a loving home with stability, in theory you learn life skills as a kid that you don’t need training as an adult for. However, most people don’t have loving parents that stay together, love each other, and can teach you every skill. Some don’t know they have a brain that is different, and need specialized training that works with them. Because of childhood trauma and ADHD, I have had to learn other techniques to handle my life and executive dysfunction. Finally approaching 40 I’m starting to put it together.

So no, we can’t discard the diagnosis. It isn’t a label or problem, but an explanation and scientifically proven reason for the problematic behaviors seen.