[8A51C]

Very accurate. The way I try to describe it, like a worn out recharchable battery- only charges to 80%, runs down quickly when you try to use it and takes ages to charge back up again.

This is in some way trivialising the suffering, but I find helps people understand a little what it's like. At it's worst whilst I might be able to get out of bed and use the toilet, it takes a level of forethought, planning and effort that is unreasonable.

Suffered with fatigue since stem cell transplant in 2011.

[quickthrower2]

Sorry to hear that. I am embarrassing mild compared to most stories I read on r/cfs (which is why I just lurk)

It has taken years to build back up to almost full time work without it being a boom/bust affair.

I can’t imagine the more severe cases because you need energy to manage the problem, like a catch 22.

[freedomben]

Yes, people don't understand that even very basic self care like brushing your teeth or going to the can be completely overwhelming. Just receiving a text or an email when you're feeling can be crushing