[radicalbyte]

An interesting fact: this research was paid for by crowd funding because the Ministry of Health refused to fund it. The Netherlands is also unique in Europe as the only country which does not even try to treat this condition.

If you get ME/CFS you are, quite literally, left to die here. Unless someone in your network looks after you.

[klyrs]

A friend is going through the ME/CFS "journey" in Canada right now. Apparently, to get disability for CFS, one needs to first apply for disability, which will be rejected. Then, one needs to be able to afford a lawyer to sue the government, which ultimately gets CFS recognized on a case-by-case basis to be debilitating. There are apparently a couple of clinics who specialize in CFS, but they're nearly impossible to access.

[buzzert]

Has anybody died from ME/CFS?

[radicalbyte]

There are regular stories in the paper about people suffering from ME/CFS choosing to end their own lives. They're usually really young (20s).

So yes.

[j4yav]

Presumably it will be very expensive for taxpayers if it’s proven, so they are incentivized to deny it.