[Isthatablackgsd]

> I am tempted to try a sleep study and see what I might learn.

I strongly recommend to get sleep study, they will help to find the root of the symptoms.

10 years ago, I have issues with my sleeping pattern, waking up tired and still tired during the day. After my sleep study, I discovered I have sleep apnea which affects how I breathe during my sleeping cycle. After the diagnosis, I got a CPAP from my insurance and been using it ever since. It improved my sleep quality and I am able to dream more often than before.

If you have the same diagnosis as mine in the future, it will take some time to get used to Bi/CPAP. It can take up to a year to get used to it, it took me two years get used to wearing a mask. I was horrified to learn from my Somnologist that 90% of his patients are not consistent with CPAP usage or don't bother to use them. I know a friend's husband, who is a Physician Assistant, have the same diagnosis and refused to use the CPAP. His wife been begging him to use it because she can hear how he sleep during the night. Still to this day, he refused to use it and still complaining about the sleep quality.

[y-c-o-m-b]

It's been well over a decade of CPAP usage every night for me, but I still haven't gotten used to the stupid mask. I fight with it literally every single night. I own about 4-5 different masks and have tried probably double that number of variants in an attempt to reduce my frustration with it. I can't sleep without out it though, so there's no other option. I wake up gasping for air within ~3 minutes of sleep. That makes me a 100% compliant user over many years. My sleep neurologist was blown away by that statistic, citing the same issues you described: most people do not consistently use their CPAP machines.

[whoodle]

I’ve had two sleep studies. I have once been diagnosed with type 2 narcolepsy and then later as my sleep hygiene improved that was changed to idiopathic hypersomnia. I don’t have sleep apnea.

At any time I call basically fall asleep within 5 minutes and I’m always tired. Has anyone else dealt with this?

I tried modafinil but felt horrible for weeks as I hoped my body would adjust. I’ve also considered armodafinil, but I fear the same effects.

The doctor wants me to try xyrem but it scares me, doesn’t have a lot of studies on it, and it’s basically a nonstarter because I have young jerks and need to be able to wake up if needed.

So all of that to say, is dementia inevitable for me? My guess is that I just sleep terrible.

Any advice is welcome.

[herniatedeel]

I'd at least try the xyrem. I've tried it - didn't work for me (my sleep issues are caused by something else), but it's not as incapacitating as it's made out to sound.

[whoodle]

*young kids lol

Hell of a typo

[mattgreenrocks]

Can you even be admitted to a sleep study with a complaint about the amount of deep sleep?

[Isthatablackgsd]

I believe you can. It couldn't hurt to ask.

[2devnull]

“90% of his patients are not consistent with CPAP usage”

That’s high. Surely someone can post scientific evidence that cpap helps with sleep despite the fact there’s almost 100% non-compliance.

/s