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by autoexec 979 days ago
> how will my life be negatively impacted by this?

Your would-be future employers may reject you because of this data. Why hire someone with a higher risk of certain diseases or disables? It'd be illegal, but companies don't care about breaking the law if it's profitable and it'd basically take a whistleblower for anyone to know it happened. They certainly won't tell you that's why you weren't hired.

You could be denied housing or be targeted by extremists. More likely though, you'll be targeted by pharmaceutical companies. If the police didn't already have a copy of your DNA on file you might now have a place in every police line up, in any state in the US, for every crime committed where DNA evidence is collected. You could get wrongly flagged as a match through human error or statistics but either way it'll be on you to hire the lawyer who will have to prove your innocence.

We're moving toward a digital caste system (several really) where the data governments and corporations have on you will determine what you're allowed to do, how much you'll pay for things, and what opportunities you'll have. Every scrap of data you surrender will be used against you by anyone willing to pay for it, used in whatever way they think will benefit them, at any time, and you'll probably never even realize what happened. Just like right now, where companies don't tell you that they used your personal data to determine how long to leave you on hold. There's no telling what kinds of harms this could bring you, and there's no taking your data back to prevent any of it either.

I hope that data never comes back to haunt you. I'd sure hate to need to count on that never happening though.

3 comments

This seems pretty far fetched.

Do you really think a judge would allow a guilty verdict based on stolen genetic data obtained from a hacker?

Do you really think braindead landlords and HR people would make decisions based on Promethease or whatever future tool replaces it?

Monetarily the genetic data is marginally valuable at best, which is the same reasons 23andme revenue comes almost entirely from novelty-seeking consumers rather than industry.

> Do you really think a judge would allow a guilty verdict based on stolen genetic data obtained from a hacker?

The judge won't have any idea how the innocent person's data got entered into the government's DNA database. The same way that judges doesn't care how police got your fingerprints on file (They got mine when I was in grade school. Teachers lined all the kids up in the hallway and the police fingerprinted us all. They told us it was in case we were kidnapped.). The judge cares about how the DNA was collected at the scene of the crime. It's enough that it matched DNA in the government's database. Even if it was discovered that the DNA came from 23andme's data I doubt they would care.

> Do you really think braindead landlords and HR people would make decisions based on Promethease or whatever future tool replaces it?

They already perform illegal background checks on employees and renters. (see https://money.cnn.com/2014/04/09/pf/data-brokers-ftc/index.h...). Whatever interesting data can be extracted from the DNA that was leaked will be added to the dossiers data brokers have on the victims.

> This seems pretty far fetched.

At the begin of Hitler's reign, the Nazis started to ask people at many occasions for so-called "Ariernachweis" papers. Those were collections of documents to show that someones ancestors were pure according to their race theory. Many people didn't question this at the beginning. Later that data was used to round up minorities, i.e. to commit the wellknown atrocities.

Once data is centrally collected, you cannot know for which future purposes it'll be used. So, the question with regards to companies like 23andme should be: Do you trust the current owners, all future owners, and current and future business partners to not misuse and safeguard your DNA data?

> Monetarily the genetic data is marginally valuable at best Tell that to big pharma, health insurers, adoption agencies, dating sites, and companies that produce addictive products for consumers.

> Do you really think braindead landlords and HR people would make decisions based on Promethease They have shown to make decisions based on DEI declarations. I rest my case.

> Do you really think braindead landlords and HR people

Maybe that part is far fetched. But insurance people will make user off it I'm sure. By letting this data out there you might be opting in to higher costs, or hassle getting insurance at all, that way.

You convinced me that, as I was already suspecting, there is no more risk in having your dna public than, for instance, having a picture of you on the internet. Arguably, even less.
"no more risk" is an odd way to frame it. Its all compounded. Having a pic of yourself online is a risk. Having your DNA leaked a risk. Carrying a cell phone is a risk. Using Google is a risk. The more risks you take you more likely you are to get screwed over.

It doesn't really matter if you're the guy who gets arrested for riding his bike (https://www.nbcnews.com/news/us-news/google-tracked-his-bike...) or the guy who gets arrested because of his DNA (https://www.science.org/content/article/forensics-gone-wrong...) or the guy who gets arrested due to facial recognition (https://www.cnn.com/2021/04/29/tech/nijeer-parks-facial-reco...) it's going to suck for you either way. They're all just different types of ammo that will eventually be used against you somehow or other.

You forgot finger prints, photo's, AI, medical history through routine exams, spending habits harvested through CC use and any form of digital banking, living habits analyzed through electric bills, internet activity, auto use, travel, etc.

Your fear is misguided and you have already lost the game.

You seem to be supporting the fact that this is a valid concern. Every piece of data can (and eventually will likely) be used against you at some point. The more data you give up, the more ammo you're handing over to the people today and tomorrow who want to exploit you. DNA contains a ton of data, and it's very different from the data in your utility bills or your GPS history. Keeping your DNA out of the dossiers data brokers keep on you would be a smart move even taking into account how much other data they already have.