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by DoreenMichele 984 days ago
There is too much focus on the "cool" factor and not enough on quality of life and results for impacted patients. I don't know how to fix it.

I've mostly given up on commenting on this on HN. I have an incurable condition and it makes zero difference that these practices directly negatively impact my life and scare the hell out of me, such observations get down voted and attacked and treated like crazy talk.

I'm sorry for what your social contact is going through.