| It's not necessarily entirely wrong. Celine Dion is an advocate for the condition because one or more of her relatives had the condition (and died young from it). "Coincidentally," she's white. Celebrities somewhat often advocate for a condition they or a relative have. If it has a genetic component associated with a particular ethnicity, well, you are going to find people of that ethnicity advocating for it. So it's not outright crazy talk to say the condition gets the amount of funding it gets because it's a Caucasian disorder. It's unfortunate that it can potentially be spun as some form of racism. I long ago concluded that as someone with a form of CF, my "white privilege" includes a lifetime of suffering that most people will happily discount when hating on white people for historic racism. We fight over an offence we did not give against those who were not alive to be offended. -- Kingdom of Heaven And in Take the Lead the main character says something like "Even if you can find someone to blame, it doesn't fix the problem." Hating on whites doesn't fix the problem. Maybe someday we can find some other reaction to history and our unhappiness with it and our desire to have a future unlike our often ugly past. |
Just the fact that Trikafta works probably will spur efforts to do something similar to sickle cell.