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by JumpinJack_Cash 1017 days ago
> > It's worth looking up Stephanie Aston of New Zealand, who just died at age 33; she apparently had Ehlers-Danlos syndrome. Several doctors told her she was faking her juvenile arthritis etc.

You don't die from EDS, unless it's the vascular type, and even then it's not the EDS but the catastrophic rupture of an artery (abdomen or aortic which has weak collagen due to EDS) that causes the death.

With a prevalence of 1 in 50,000-200,000 you can't fault the doctors for not seeing it or just branding it as very unlikely, of course the accusation of faking an illness should not be tolerated.