[recursinging]

I had a close friend with T1D who asked me to help him set up, and dial in a closed loop APS about two years ago. I took a deep dive into it and found it to be much, much more complicated than the PID type regulation I was expecting it to be. Plus, if I made a mistake, he might die. So I declined out of fear.

Unfortunately he did die just last March, alone in his apartment after slipping into a coma. His pump kept right on pumping him straight to his grave because the feedback loop of the system required human intervention, even if the human is incapacitated.

I wish I would have taken the risk, and I do hope this complicated, but solvable problem will be, and the solution made available to those who need it.

[quiet_wolf]

I am really sorry for your loss. I know you want to blame yourself but you could have just as easily killed them setting up the loop as well. Plus with no one to maintain the system they would have likely run into many issues. It isn't a system to be set up or maintained by those who aren't willing to dedicate a lot of time and understanding at this point and who are not technically inclined.

For most T1D the best prevention if you can afford it is still a CGM(which you need for the loop too) and making sure your low alert system works and you have another person connected to your data in case you are incapacitated with their low alert system set up. I'd also love to see this hooked up to EMS eventually too.

Unfortunately for many people the cost of a CGM or getting insurance to cover it is the prohibitive factor though. I really hope this part of the equation changes someday soon.

Source: Partner of T1D

[tectonic]

That’s horrible, I’m sorry for your loss.