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by polypodiopsi 1041 days ago
Just a intuitive thought, a bit unresponsible maybe, so consider on your own risk: you researched the effects of ketamine and its derivatives on your disorder? Din't know why I think of this; probably because they are know to also affect obscure pain stuff like phantom pains and generally interact with perception (I feel it reduces oversensitivities like not beeing able to bare some stimulus and such) currently researched as an fast acting and lasting over its acute effects treatments for depression.
1 comments

If I'm ever eligible for a study into it I'd definitely at least consider the idea, though it's not something I'd want to do outside of medical supervision given the mechanism of my condition is not well characterised yet.

One anecdotal thing from support groups etc that makes me cautious is that while some people are born with it and some people contract it spontaneously later in life (this was my case), other people can contract it after taking various types of drug. Typically these are serotonergic drugs like antidepressants, psychedelics, and that sort of thing which aren't in the same category so it'd probably be okay but it's definitely possible I can make things worse as well as better.