[rzwitserloot]

> I really think medical science gets many things wrong and knows only a small piece of puzzle on how the human body works, and people with long covid are stuck in that knowledge gap.

The vast majority of medical researchers agree with you.

> started taking about 50 different supplements with any "word-of-mouth" evidence from Reddit forums

Just taking every chemical under the sun because some random jane said 'hey it worked for me' is not better, obviously.

Anti-quackery activists and doctors in general are telling you that taking a boatload of supplements based on ads and shills is unlikely to help (you got real, real lucky here), and is quite likely to cause serious damage, and also takes you mostly out of the medical sphere of influence entirely - whatever weird results come up when medical professionals run some tests are now tainted by all the stuff you are taking.

An entirely separate problem is that a combination of an ever expanding menu of medical interventions that we (humanity) knows about and an aging population means that healthcare as a principle is effectively unaffordable without massive tax increases which the population votes against. Hence, the healthcare that can be provided is gruff and fast, and cannot cater to complicated cases like yours. Which has to be very frustrating for you.

[treprinum]

So if I understood you correctly, you are complaining I got better because I took supplements without a prior medical professional approval because other folks discussing long covid reported improvements from taking them? Cycling through dozens of specialists across two years without a single one finding anything, yet barely existing? Did I spoil your pristine machine learning dataset? Are you serious?

[tim333]

Yeah it seems logical that trial and error with the "hey it worked for me" stuff probably has more chance of working than doing nothing.