| This is not at all surprising and has been noticed by actual chronic fatigue sufferers for years - maybe we should have listened to them? https://cfsremission.com/2015/10/19/miyarisan-clostridium-bu... This is an open sourced microbiome site that's run by the author of the above blog, someone who has CFS and a background in science:
https://microbiomeprescription.com/ You can easily spend around 200 dollars to get a full sequencing of your stool and suggested food and probiotics to take. The problem is most probiotics you can get over the counter are pretty much a scam. Lactobacilli don't survive fecal transit. Even suggestions like changing diet don't really help if your microbiome is that messed up, and you will see more cutsey suggestions like "Eat more resistant starch to increase butyrate producing bacteria!". The two probiotics that consistently actually work for CFS patients are Mutaflor (a probiotic E. Coli Strain) and C. Butyricum. You can only now just get this in the US from Pendulum, but it's been available in Japan for years as the Miyarisan probiotic, which you can easily order from eBay. Butyrate/buytric acid is a game changer and is being studied in a variety of diseases. It's a Histone deacetylase inhibitor, but without the side effects of the drugs on the market. A relative of mine with Parkinsons supplements buytric acid and this has controlled her tremor. PD and autism are also associated with disrupted gut biome and benefit from Butyrate or Butyrate producing probiotics. You can read more about it here: https://thehomeschoolingdoctor.com/butyrate-series/ But, I guess big pharma, and CFS patients be faking/crazy, and probiotics are "hippie" stuff (along with the fact that you can't actually buy the ones that make a dent in these condition easily in the US). Really wish patients and their lived experiences were taken more seriously. |