[light_hue_1]

That doesn't sum it up at all.

Without ventilation almost everyone dies by 25 which was the case until the 70s. The poster is right there's a marked decline by your early 20s. And depending on when and where their story happened it could be very accurate: it was almost impossible to make it past 25.

Almost everyone needs to be on ventilation to make it further and then the median survival is just shy of 30. That significantly impacts your quality of life unfortunately.

[Traubenfuchs]

I think it would be better for the quality of discourse if people online would stop going into discussions about numbers like this without easily googleable sources.

Meta analysis from end of 2021:

https://n.neurology.org/content/97/23/e2304

"The median survival age from the pre-1970 birth cohort was 18.3 years (95% CI 18.0, 18.9) compared to 24.0 years in the 1970 to 1990 birth cohort (95% CI 22.8, 25.0) and 28.1 years in the post-1990 birth cohort (95% CI 25.1, 30.3)."

"The cohort analysis is also likely to represent a comparison of ventilated and nonventilated patients because ventilation was introduced in many clinical settings only in the 1990s."

[sdflhasjd]

Sorry, I'm unfortunately aware, a friend of mine succumbed to DMD at just 21 even with significant medical care. I was just taking issue with the rather absolute "impossible to survive".